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Tags: cfids cfs chronic fatigue fibromyalgia fms illness m.e. post syndrome viral
Channel: People & Blogs
Uploaded: December 31, 1969 at 6:59 pm
Author: officialsleepydust
Length: 09:16
Rating: 4.80
Views: 50376
The video aims to help the friends and family of ME/CFS (including Myalgic Encephalomyelitis (M.E.), Chronic Fatigue Syndrome (CFS), and Post Viral Fatigue Syndrome) sufferers understand the illness and what their loved ones are going through. To view a clearer, larger version of the video, visit: http://www.sleepydust.net/me-c... |
Video Comments
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PatchDee (December 31, 1969 at 6:59 pm) |
| First ME attack was in 6th grade, 1958. ME wasn't discovered until mid-80's. My attacks (1 week to 8 months) for 30 years. Finally diagnosed '88 when Mono kicked it up. Managed to work until 7 years ago until it became so bad I couldn't walk any distance without collapsing. I am now 61 & on Disability. Have many good days, but can NEVER commit to anything. Lonely life, but have love & support from siblings & few friends. Life is discouraging - I still try to do things, but always relapse. |
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AnaGreatestAsset (December 31, 1969 at 6:59 pm) |
| Omg! i get the same thing!! i'm 14, can barely get in school or well anything at the moment.Hope things are going better for you now (: xxtake care :) x |
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TurboBailey (December 31, 1969 at 6:59 pm) |
| This video made me cry. Its not often that happens. Thanks for making it, it has helped me open my eyes to how my girlfriend (who has ME) is feeling. Although her's is only mild considering what others go through, so much in this video pulled strings at my heart and has allowed me to feel empathy at some kind of level with what she goes through.Thanks for opening my eyes :-) |
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ringnebulablue (December 31, 1969 at 6:59 pm) |
| Wow I have have thiss illness for overa decade. It's not easy to deal with. |
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AnaGreatestAsset (December 31, 1969 at 6:59 pm) |
| Thankyou SOOO Much for this video!!Means alot, bought me to tears :(I've only had M.E for about a year now. But, i can barely cope. i'm 14, and have lost so many friends due to this. I can no longer attend school, and this is the most important year of my school life. GCSE's- i cant do them :(I've posted this video on my bebo page, so hopefully people will be able to understandmy heart is with you all :) We'll get throug it!!Much Love, Take Care!Fiona xxx |
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isegoria1 (December 31, 1969 at 6:59 pm) |
| I am presently seeing a doctor for conditions that are just like this. I am awaiting results from a gamut of test. I do not even know if this can be detected. As an additional symptom I crash extremely hard after any substantial meal. It is like a roller coaster right now. The second I go up fast for a short burst I know the crash is equally bad. I have to fight to get the simplest things done. |
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red28mil (December 31, 1969 at 6:59 pm) |
| i've had this for 8 years and finally found out what was wrong with me 2 weeks ago.i found this video really good and touching. |
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megawatti007 (December 31, 1969 at 6:59 pm) |
| I had "it" too. I believe that the term is used because they haven't a clue what is wrong and many of us have quite different pathologies. So they should just call it unknown illness. "M.E." sounds like a baffle 'em with science" name- that also means little. How did I recover? Slowly. Frightened. This was in 1992-4 |
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scottysavlette (December 31, 1969 at 6:59 pm) |
| I know what u're talking about i had CFS since my 14 (now almost 20) and teachers, and fellow students, friends all had their ironic and sarcastic comments like "hey you'll break ur personal record this week" they tried to put me in a mental institution even when a whole army of doctors and psychiatrists said that it's all physical. the life of a person with CFS/ME isn't easy. the only thing that kept me standing till know is my willpower, my wit and my joy. i wish you all the best =D |
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koalastephanie (December 31, 1969 at 6:59 pm) |
| Beautiful video. Very informative. |
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