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Tags: awareness  bite  bullseye  chronic  disease  epidemic  health  illness  invisible  Lyme  prevention  public  rash  tick  ticks  
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News & Politics
Uploaded: December 31, 1969 at 6:59 pm
Author: sunsetdivingbird
Length: 08:09
Rating: 4.91
Views: 10247
This 2006/2007 video was produced by Starving Artist Pictures and Crosse Media for Ticked Off and Fed Up, Inc. (TOFU), a 501(c)(3) charitable organization in Gettysburg, Pennsylvania. Please check out their website at TickedOffandFedUp.com. For more info about Lyme, go to ILADS.org or WilderNetwork.org, and watch the trailer for the documentary "UNDER OUR SKIN: THE UNTOLD STORY OF LYME DISEASE" (an Audience Choice Award finalist at the 2008 Tribeca Film Festival) at LymeDiseaseFilm.com.

Video Comments

welsh4360 (December 31, 1969 at 6:59 pm)
You can pass Lyme disease through sexual contact???
Jaennemarie (December 31, 1969 at 6:59 pm)
Thank you for the information. My daughter has been fighting Lyme's for a few years but they have determined she has had it for about 30 years. It has really affected her brain and she is now going to be having a pic line and another bought of antibotics. Horrible disease.
sunsetdivingbird (December 31, 1969 at 6:59 pm)
I'm so sorry... I've been sick since I was 14 and know how hard it is to have a chronic illness when you're young (it must have been even harder for you, at just 10 years old!). I hope you find a better doctor soon who will give you the care that you need!
sunsetdivingbird (December 31, 1969 at 6:59 pm)
It's true that many doctors don't know enough about Lyme... if you think you may have Lyme, look for a "Lyme-literate doctor" or "LLMD" (a term used in the Lyme community—-most regular doctors won't know what you mean if you ask for a referral to one)... you can find one through LymeNet or the Lyme Disease Association website. And btw, according to the International Lyme and Associated Diseases Society, fewer than 50% of people with Lyme saw a tick or noticed a rash-- see ILADS (dot) org.
sunsetdivingbird (December 31, 1969 at 6:59 pm)
The treatments for chronic/late-stage Lyme are much more difficult... these treatments shouldn't "destroy your health" themselves either, but they are NOT fun, since they can cause symptoms to get worse temporarily as bacteria dies off. And those of us with chronic Lyme often have to stay on these medicines for months or years (and often this disease has destroyed our lives in many ways by the time we get treatment). That's why it's so important to get treatment before it becomes chronic.
sunsetdivingbird (December 31, 1969 at 6:59 pm)
I can understand how it might seem that way... but believe me, if you have Lyme, you NEED to get treatment. Lyme is progressive and generally gets harder to treat the longer you have it. Treatment for early Lyme is usually just a single oral antibiotic, for a couple of months at the most. If someone who was recently infected is given multiple or IV antibiotics, it is usually because they already have neurological involvement or other symptoms of "late-stage" Lyme. (cont'd below)
sk9utube (December 31, 1969 at 6:59 pm)
It almost seems better to avoid most modern hospitals altogether if you have a swollen tick bite because they either will disagree you have lyme disease altogether (especially if you have shitty health insurance) or they'll pump you up with a cocktail of antibiotics that will destroy your health.
fastgirl321 (December 31, 1969 at 6:59 pm)
I was bit bye ticks in 2001 and have been sick ever since i was 10 years old a little girl with not a care in the world....ever since then ive had joint pain fatiuge and awful headaches but its like when i go to the doctors its "Your making it up""There's nothing wrong with you""Well lets take another blood test"I SWEAR IF ANOTHER DOCTOR SAYS THAT TO ME IM GONNA PUNCH THEM IN THE FACE!!!!!!!!!!!!!!!!!why on earth would i make it up??why would i fake it?and i dont wanna be poked anymore
sunsetdivingbird (December 31, 1969 at 6:59 pm)
Thank you! That's a great brochure.
ecftube (December 31, 1969 at 6:59 pm)
Wrote a very comprehensive Lyme brochure with the help of 2 Lyme specialists. Happy to email a copy to anyone interested. Elaine

 


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