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Tags: bedbound bedridden cfs chronic disability documentary encephalomyelitis fatigue illness me myalgic syndrome
Channel: People & Blogs
Uploaded: December 31, 1969 at 6:59 pm
Author: DiamonDie
Length: 07:48
Rating: 4.57
Views: 10104
A short documentary piece about a girl who lives with severe CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis) confined to her bed. Found on the Invest in ME website (I think). Note that in the worst cases CFS/ME can get so severe that the person is essentially paralyzed, has to be tube-fed, cannot speak and cannot even tolerate any light or sounds.I have written a book about CFS/ME/FM treatments titled "Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia". It features over 250 medications that can be used to treat these illnesses. For more information see http://www.brokenmarionetteboo... |
Video Comments
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nattleebs (December 31, 1969 at 6:59 pm) |
| i agree with you!i havn't ever got as bad with my m.e to be bed ridden but on a bad day sometime i don't have the energy to talk for that long and when i do i sound drunk cause of brain fog!! haha |
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Chnswdchldrn (December 31, 1969 at 6:59 pm) |
| I hear that! lazy bitch! |
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pilomaya2012 (December 31, 1969 at 6:59 pm) |
| what about talking -crusts! i am sorry i had ME really bad ad you dont worry and obsess like that you are wiped out with a constant flu like illness! |
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pilomaya2012 (December 31, 1969 at 6:59 pm) |
| i think youre right about thats actually.she has alot of energy for a ME person. when i was bedridden with the illness i wasnt talking like her -she could run a talk show. |
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Czchar (December 31, 1969 at 6:59 pm) |
| Wtf, thats just being fucking lazy. |
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antares4141 (December 31, 1969 at 6:59 pm) |
| Mold and CFS symptoms are directly related to each other. You can prove this to yourself by going to walmart buying a $37 dome shaped 9x7 tent,(no stakes needed, nylon very low on VOC'S) setting it up in your bedroom and putting a medium to large size hepa filter in it. Don't come out without a respirator designed for asbestos and mold abatement EVER,For about a week anyways. I know I am not the only one with this condition. PLEASE TRY IT AND CONFIRM IT FOR YOURSELF WHAT YOU ARE UP AGAINST! |
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JamesBarkson (December 31, 1969 at 6:59 pm) |
| May I ask if you are a nurse or Dr? I also have CFS and they have tested my thyroid and everything else. My tests are all normal. But I have these awful symptoms. How do you know she is "severly hypothyroid"? The puffy face is just her wieght. She doesn't move or exercise because of CFS so ofcoarse her face is puffy. She's a little heavy. If you have some helpful medical advice to offer, please do. I and other people with this are suffering. But it's not thyroid. |
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kruseman44 (December 31, 1969 at 6:59 pm) |
| She is severly hypothyroid. Migranes, thin hair, puffy face. Get her some T3 for Gods sake |
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Sefardisafran (December 31, 1969 at 6:59 pm) |
| Beachbayu, are you a Neurologist? are you a "visionaire"? or are just some scumbag that hates people because of your lousy life.Youn Anarch |
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7universes (December 31, 1969 at 6:59 pm) |
| I bet a million bux in the bank would cure this shyte fast. |
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